Monday, December 28, 2009

December 27

After a very quiet Boxing Day, we spent Sunday with friends. Mercedes, Kevin and Stella met us for brunch on their way to NJ. Then Aidan invited Suzanne, Karen and Nick over for a pizza and dance party. He played a mean air banjo to the Beach Boys!


Aidan had a very special Christmas! We were able to see many of the people he loves, and he was showered with wonderful, thoughtful gifts. We started the day in Philly with Carole, Jo, Alison, and Ellyes. Mid-day, we stopped at AI duPont hospital to share gifts with the kids on the bone marrow unit. One child was alone, and we stayed and played with her for about an hour. Then we made our way home for more presents and a family dinner. Aidan loved his evening with Ali, Lizzie, Chris, Emily, Nick, Nini and Pops. Karen and Jenny joined us for dinner which was followed by a Nerf gun battle in the basement (Nick, Ali, Lizzie, Aidan and Jenny).

December 24

As has been our tradition on Christmas Eve, Aidan and I went to see the trains at the Brandywine Museum. This year, however, we had a special VIP visit thanks to Paul and Gail!

Dec 21

Jazzy round-up!

Sunday, December 20, 2009


Aidan has enjoyed the snow! We've done some shoveling, sledding, shoveling, snow painting, shoveling... And some resting and snacking!

Monday, December 14, 2009

Tree Trimming

Aidan has been talking trees for a couple of weeks now, and I promised that Saturday after his MRI we'd get one. So we did. We faced a big decision over whether to go the live or cut route. Aidan really, really wanted a big tree, but can't stand the idea of composting a cut tree. As you might imagine, we did considerable shopping around before finding a great compromise - a medium sized live tree at a reasonable price (from a store that's going out of business).

Next dilemma was how to get it in the house. Lucky for us, Francisco and Teribio were still around. Though they struggled and strained over what was reportedly a 300lb tree/rootball combo, we were able to decorate it same day! Thanks guys. Karen joined us, and we had a lovely evening getting ready for the holidays. Of course Elizabeth was a part of the preparations, though I think she's planning to celebrate Christmas in the tropics. Betty, Aidan was ecstatic to be reunited with his Thomas and Percy ornaments as well has his Jetson's and Fisher Price barn ornaments! Thank you for single handedly stocking the tree with his favorites!

Wednesday, December 9, 2009

MRI Week

We covered a lot of ground this week and were able to mix in fun with friends and family around and between the medical appointments.

Dec. 6th Aidan enjoyed the first snow of the year with Ali, Lizzie, Chris and Emily who came up to PA to celebrate Pops' birthday.

Monday Aidan was able to go to school before we drove down to DC for his Tuesday scan. The hospital gown/popsicle picture was taken just as he was waking up from sedation for the procedure.

That same afternoon, Aidan went to see Carol, Edna and Margarita for an official dental visit, though there was lots of unofficial fun. He had his teeth cleaned and received a fluoride treatment without a bit of fuss. Woo hoo. Margarita let Aidan visit the prize chest several times, so he made out pretty well.

Next we visited Nick and romped with Ava. That was lots of fun for a while, but then the guys got hungry... So we headed to Cactus Cantina for chicken tenders.

Wednesday was a quiet day - we were much over due for sleep and rest, but in the evening, we met Amy S. and Tessa for dinner. A great treat to reconnect/meet old friends. Aidan ate a whole cheese pizza himself (Amy ate the crust).

Thursday we headed back to CNMC for our follow-up meeting and received confirmation of the stable scan report. That made for a very nice way to end our trip to DC! We headed home that afternoon. I've fallen asleep several times trying to work on this post which is why it is Saturday and you're reading news from Tuesday.) Tomorrow I'll post pics of Aidan decorating our tree.

Tuesday, December 8, 2009


Prelim read of scan - stable!

Wednesday, December 2, 2009


We've had lots of fun over the past two weeks. A little taste of it will follow with the pics...

Highlights: trains at Longwood, 1st trip back to the RR museum since radiation, dress-ups at Ali's and Lizzie's,

Aidan has an MRI on Tuesday, Dec. 8th. I'll post again when I have news about it.